The Lived Experiences of Children who Have a Sibling with a Chronic Disability

Authors

Holly Willardson, Brigham Young University
Dr. Barbara Mandleco, Brigham Young University

Keywords

lived experiences, children, chronic disability, siblings

College

Nursing

Abstract

Between 5-31% of children in the United States will experience a chronic condition in their lifetime, a number which can only be expected to climb with the advances of medical technology that allow these children to live longer. Because of this rise in US children with chronic conditions or disabilities, research has examined the effects the condition has on the family unit. In the past, many studies on families raising children with disabilities/chronic conditions have drawn data from parents (mostly mothers), teachers, and clinicians, but little research has been gathered from the perspective of the sibling.

Recommended Citation

Willardson, Holly and Mandleco, Dr. Barbara (2013) "The Lived Experiences of Children who Have a Sibling with a Chronic Disability," Journal of Undergraduate Research: Vol. 2013: Iss. 1, Article 1630.
Available at: https://scholarsarchive.byu.edu/jur/vol2013/iss1/1630