Type 1 diabetes mellitus (T1DM), a common, chronic disease, affects the patient as well as the family. It requires daily vigilance in blood sugar monitoring, dietary management and insulin administration. Research has examined the impact of T1DM on family adaptation and relationships. However, few current data describes parents' perceptions of challenges. The purpose of this study was to identify challenges and impact on the family perceived by parents raising children with T1DM. Using a qualitative descriptive design, 21 parents raising children with T1DM participated in audio-recorded focus groups. At the time of the interviews the children ranged in age from 2 to 17 years, with duration of diagnosis ranging from six months to 10 years. Seven major themes were identified, including issues regarding (a) children's behavior and development, (b) physical management of diabetes, (c) parenting challenges, (d) siblings and extended family, (e) friends and community, (f) school, and (g) health care system and diabetes organizations. Within each theme, numerous sub-themes were identified. The identification of challenges and unmet needs of families raising children with T1DM suggests health care and schools systems improve the services and support provided. Mental health issues should be managed. A follow-up plan should be in place at the time of hospital discharge, to include provider initiated contact as well as contact by another parent raising a child with T1DM.
College and Department
BYU ScholarsArchive Citation
Loucks, Carol A., "The Experiences of Families Raising Children with Type 1 Diabetes Mellitus: A Qualitative Investigation" (2011). Theses and Dissertations. 3064.
type 1 diabetes mellitus, children, parent, perceptions